Top:Health:Diseases and Conditions:Organizations

• AIDS/HIV@
• Allergies@
• Arthritis@
• Asthma@
• Back and Neck Injury@
• Brain Injury@
• Cancer@
• Cerebral Palsy@
• Cystic Fibrosis@
• Diabetes@
• Dwarfism@
• Epilepsy@
• Fibromyalgia@
• Glaucoma@
• Heart Diseases@
• Hemochromatosis@
• Kidney Disease@
• Liver Diseases@
• Muscular Dystrophy@
• Myasthenia Gravis@
• Neurological@
• Osteoporosis@
• Prader-Willi Syndrome@
• Psoriasis@
• Scleroderma@
• Sjogren's Syndrome@
• Sleep Apnea@
• Stroke@
• Substance Abuse@
• Thrombosis@
• Thyroid Disease@
• Williams Syndrome@

• Canadian Malignant Hyperthermia Association - dedicated to informing health care providers, patients and the general public in malignant hyperthermia.
• Pseudofolliculitis Barbae Sufferers of America - to educate the public about "razor bumps," a disease which afflicts many men, and promote the only 100%-effective cure - growing a beard.
• Sarcoidosis Research Institute - a non-profit, tax-exempt organization dedicated to increasing our knowledge of the disease sarcoidosis.
• Sick Kids Web Ring - links all sick kids around the net together by their homepages.

• 11q Research and Resource - parent, researcher support organization for children with structural abnormalities of the 11th chromosome including opportunity to participate in research.
• Achromatopsia Network, The - information/support network for individuals and families concerned with the rare inherited vision disorder achromatopsia.
• American Hyperlexia Association - a pervasive developmental disorder with autistic-like symptoms, but with a strong visual ability to decode and a precocious ability to read.
• Anencephaly Support Foundation
• Aplastic Anemia Foundation of America, Inc. - assists patients and families dealing with aplastic anemia, myelodysplastic syndromes.
• Canadian Bacterial Diseases Network
• CDG Syndrome, what is that? - site of the CDG Society; contains information about Carbohydrate Deficient Glycoprotein syndrome, an inherited metabolic disease; in Swedish, English and German. Scientific references.
• Center for Health Studies - research focuses on prevention, treatment of common problems in primary care, medications, mental health and cancer.
• Centre for Comparative Infectious Diseases - multidisciplinary centre for the study of infectious diseases, with links to other infectious diseases sites.
• Children Afflicted with Lymphatic Malformations - CALM - organization of parents and children afflicted with lymphatic malformations offering informmation support,medical references and ecouraging research into improved treatment.
• Circle of Friends - support group for ALL autoimmune diseases. Members get together via e-mail to share life experiences, humor, coping, venting and fears.
• Cornelia de Lange Syndrome Foundation
• Disfigurement Guidance - information on treatments, literature, compensation and other services and facilities concerning disfigurement guidance and skin camouflage.
• Dystonia Medical Research Foundation - information on an illness dominated by involuntary spasms and muscle contractions that induce abnormal movements and postures
• Family Caregiver Alliance - info, education and services for families and professionals who care for adults with cognitive disorders, including Alzheimer's, stroke, Parkinson's, brain injury, brain tumors, Huntington's, and other brain impairments.
• Friends' Health Connection - connects people who are currently experiencing or who have overcome the same disease, illness, handicap or injury in order to communicate for mutual support.
• Human Growth Foundation - helps individuals with growth-related disorders, their families, and healthcare professionals through education, research and advocacy.
• IBS Self Help Group
• Infectious Diseases Society of New Jersey
• Johns Hopkins Medical Institutions InfoNet - list of phone numbers for a variety of patient advocacy organizations; also includes some WWW links.
• Klippel-Trenaunay Support Group - provides information about the group and about syndrome, and to provide families, adults with K-T, and professionals with links.
• Lupus Foundation of America@
• Lyme Disease Network of NJ, Inc.@
• National Aphasia Association
• National Association for Down Syndrome (NADS) - news, resources, and scientific information related to down syndrome from NADS, a not-for-profit organization serving people in the Chicago metropolitan area.
• National Association for Incontinence
• National Enuresis Society
• National Hemophilia Foundation - dedicated to the cures of inherited bleeding disorders and the prevention and treatment of their complications.
• National Keratoconus Foundation - General information keratoconus, an ailment of the eye.
• Neutropenia Support Assoc. Inc - a registered non-profit charity to increase awareness and understanding.
• Nevus Network - support group for individuals with giant congenital nevi and their families.
• NORD (National Organization for Rare Disorders, Inc.) - voluntary health organizations dedicated to providing information on the prevention, treatment, and cure of rare "orphan diseases."
• Nystagmus Action Group - information on the eye disorder.
• Pituitary Tumor Network Association - dedicated to support, pursue, encourage, promote, and, where possible, fund research on pituitary tumors in a sustained and full-time effort to find a cure for pituitary diseases.
• Rehabilitation Engineering and Assistive Technology Society of North America (RESNA) - interdisciplinary association for the advancement of rehabilitation and assistive technologies.
• Society for Light Treatment and Biological Rhytms - SLTBR
• Tuberous Sclerosis International - world organisation of national TS associations.
• Waldenstrom's Macroglobulinemia Support Group - an international support group composed of individuals who have Waldenstrom's Macroglobulinemia and their family members.